10-year-old boy diagnosed with Myxoma

[Robaltap]

Hello,

My cousin, 10 years old (will be 11 in december), yesterday was diagnosed with heart myxoma. He is very active boy & was going to enter one more sport circle, but was advised to check the heart first & so this myxoma was found. His parents were advised to cut his sports activity for now & schedule a surgery as soon as possible.
So the question is obvious - what can we do (with vitamins etc) to help this boy besides everything that official medicine is going to propose?

Here is his diagnosis:

Cavity of the heart is slightly enlarged.

False chord/tendon in the apical-third of the Left ventricular.

Retractive function of myocardium is normal.

LVEF left ventricular ejection fraction 76,7 % - HIGH

Ovoid tumor of basal anterior part of the interatrial septum 5x3 cm Immobile with uneven contour, hyperechoic with growth in the direction toward both the right and left atria at 1/3 of their size, more to the left: myxoma

Valves, pericardium, great arteries are of normal patterns/structure.

DechoCG: blood flow is slightly increased/enhanced in the left atrium along the prominent/protruding tumor, gradient 10 mm Hg

Transvalvular blood flow is not changed.
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Thank you in advance!

[ofonorow]

Hopefully johnwen will respond! (This one is above my pay grade)

[Johnwen]

[Robaltap]

Thank you very much for this information! I'll see the EKG, Echo & write what it says. I just wanted to ask right now about the supplements, as we want to start helping him to prepare as soon as possible - could you please write what exact supplements are recommended right now? We have VC, Q10, taurine, L-lysine etc & can start right away (he actually already taking VC), but would like to know for sure what is safe for him in order not to do any harm (this "sudden death" words in symptoms list making us supercautious about everything). Thank you!

[eDOC]

Thank you very much for this information! I'll see the EKG, Echo & write what it says. I just wanted to ask right now about the supplements, as we want to start helping him to prepare as soon as possible - could you please write what exact supplements are recommended right now? We have VC, Q10, taurine, L-lysine etc & can start right away (he actually already taking VC), but would like to know for sure what is safe for him in order not to do any harm (this "sudden death" words in symptoms list making us supercautious about everything). Thank you!

Use DMSO he should be good, shall take care of all issues.

Good Luck.

[Robaltap]

Use DMSO he should be good, shall take care of all issues.
Good Luck.

Never heard of DMSO. I need to read about it, thank you!

[Robaltap]

Sorry for bothering again, but I would be greatly appreciated if someone could give an advice again (Johnwen?). They did more tests since the doctors wasn't sure that it is indeed myxoma - and after new EchoCG, MRI & CT Scan they don't know what it is at all now. I'll quote the papers below & here is the link to photos & videos from these tests (along with quoted conclusion papers): https://www.sendspace.com/file/ixwhu1 Could you please write your thoughts on this, have you dealt with anything like this in the past & what can we do to help this young boy. Thank you very much!

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-=EchoCG=-

EDD - 4,5 cm
ESD - 2,7 cm
RV - 2,3 cm
Ao - 2,1 cm
AAo - 2,1 cm
LA - 3,3(4,6*3,6) cm
RA - 4,8*4,0 cm

IVS - 0,7 cm
PWLV - 0,7 cm
EF - 71 %
FS - 40 %
SV - 72 ml

Chambers of the heart: right ventricular cavity is moderately dilated. In the projection of both atriums along the whole IAS is space-occupying lesion sized 5,3*3,9 cm, not associated with the structures of the TV valve, without obstruction of the AV orifice/openings. The lesion is closely adjacent to the base of the aorta and the base of the anterior mitral leaflet.
Accelerated flow in the superior vena cava with HD 7 mm Hg.
IVS - traced/observed along the whole length.
IAS - not traced/observed clearly
Retractive function of the myocardium of the left ventricle is satisfactory.
Areas of hypokinesis are not revealed.
Aorta is not dilated.
Aortal valve: leaflets are thin, flexible, HD 9 mm Hg.
Mitral valve: leaflets are thin, flexible.
Tricuspid valve: without peculiar properties.
Pulmonary artery: not dilated, trunk diameter 2,2 cm.
Pulmonary artery valve: without peculiar properties, HD 7 mm Hg.
Extra chord/tendon in the middle third of the cavity of the left ventricle
Pericardial features: no effusion.

Doppler EchoCG (with CDM):
Mitral regurgitation - ( no )
Tricuspid regurgitation - ( + )
Aortal regurgitation - ( no )
Estimated pressure in the right ventricle 23 mm Hg.
HD in the superior vena cava 7 mm Hg.

Conclusion: space-occupying lesion in the atria. CT scan is recommended to clarify the localization.

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-=CT Scan=-

Scan mode: spiral. The slice thickness: 0,5mm.
Contrast enhancement - "Ultravist 370" 50ml.

Objective: to exclude space-occupying lesions of the atrium.

Vessels of the mediastinum are not dilated.

Thoracic aorta without changes: ascending section 17,5 mm, at BCV level 16mm, at the level of the left subclavian artery 15mm, descending 14mm, at crura of diaphragm level 12,5mm, pulmonary trunk 17mm, right branch 13mm, left 15mm.

Pulmonary veins flow typically into left atrium.

Interatrial septum is partially traced in the lower/basal divisions, he rest of the length is not clearly differentiated due to the presence of space-occupying lesion with clear/distinct, sometimes bumpy/uneven contours, sized 53x34x50mm, fairly homogeneous patterns/structure of densitometric density 53-60HU, with areas of partial calcification at the periphery and a single section hypodensive density (up to 31HU) sized 7x11mm. This lesion compress SVC orifice to slit-like form up to 2mm in cross-section, without the prolapse through the atrioventricular orifice/openings and the involvement of valves, "wraps/surrounds" the posterior contour of the base of the aorta without convincing signs of invasion. Functional internal volume of the atrium is reduced. In the venous phase of contrast (70 sec.) accumulation of contrast agent by mass lesion is not observed (contrast gradient of less than 5 HU).
Coronary arteries depart typically from the coronary aortic sinuses, evenly contrasted, with a close location from the present lesion, without signs of invasion.
Interventricular septum is traced/observed along the whole length without reliable/certain signs of a break. Fluid in the pericardial cavity is not detected.

Conclusion: CT-image of space-occupying lesion in the projection of the interatrial septum (fibroma?).

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Thank you!

[eDOC]

deleted........

[Robaltap]

We would be appreciated if someone could write about supplements support after surgery in such case because they did it on 7th of october. The tumor was resected, but surgeon had to leave 3 cm out of 5 since it was impossible to resect all of it & the surgery went for 6 hours. They said that it looks like the tumor is old (since it's calcification, density etc). He feels ok now, but we would like to know how can we support his health with supplements now? They take some VC, but what about exact amount & other supplements? Is it ok for him to take Q10, taurine, lysine etc?

Also there's the issue with the recovering from anesthesia - his father noted that the boy became more vulnerable, whining, irritable & even has hair loss (parents saw hair on his pillow) - they are consulting with doctors now, but again would be appreciated if someone here could give an advice about natural, supplements approach in dealing with such issues.

Thanky you!

[ofonorow]

Is he listless? Otherwise he is awful young for CoQ10. Very many steps (and vitamins) are required for the human body to make coq10 itself, so good nutrition is important. (Maybe supplement 100 mg for a limited time to see whether it helps.)

It is hard to go wrong following Linus Pauling's core advice from the 1986 book HOW TO LIVE LONGER AND FEEL BETTER

In a nutshell,
6-18 grams vitamin C
400-800 iu vitamin E
25000 iu vitamin A
1 or 2 Super B-complex
multi vitamin/mineral.
Reduce sugar and drink a lot of water.

In your son's case, adding lysine (and possibly) proline wouldn't hurt to 'strengthen" the boy as johnwen suggested.

[Robaltap]

Thank you for the answer. No he's not listless, I would say he is irritable & touchy, much more than he ever was, parents don't recognize him being this way (I'm not his father, by the way, he's my cousin.) Never thought CoQ10 can do any harm to the young aged, will be more watchful now...

Ok, I'll tell parents to try Pauling protocol, but could you please be more specific about children dosage (10-11 year old) of Lysine, Proline & B-complex?

Also, I wonder - since he became so much touchy, I guess he must benefit from taking niacin or niacinamide? I've read a lot about it since I'm taking it myself & know everything about flush etc, but what about children dosage taking into account such heart (& surgery) issues?

[Johnwen]

[Robaltap]

[Johnwen]

[Robaltap]

Got it, thank you very much! We'll keep this dosage then. And yes, you are absolutely right about support. I'll talk to his parents about it too.