Post
by ofonorow » Tue Apr 17, 2012 2:55 am
Well, it might be too soon to know for sure, but I think the ordeal is over. I feel really good (other than the induced Rheumatoid Arthritis from the high steroid/prednizone IV during my second hospital stay!? More on this below..)
With the tonsils out, the jaw/tooth cavitations cleaned/sanitized, I believe I have gotten rid of the source of infection.
And I have learned what Rheumatoid Arthritis (RA) really is.
RA is an insufficiency or lack of the endogenous hormone cortisol. Period.
My problems began not long after my half-brother Mike Till passed away last year, and were undoubtedly exaggerated due to my adrenals starting to fatigue. I must have lost at least some of my ability to make endogenous cortisol, probalby from stress of the constant infection combined with my brothers death.
I was fortunate to meet a few days ago face-to-face with a world expert on RA (who I won't name unless he allows me to.) He confirmed this to me - that my intuition is correct about my body simply not making cortisol. This expert is very well known, has authored more than 400 scientific papers, and knows this disease backward and forward. He controlled his patients RA for 25 years in his private practice - using low dose prednizone and methotrexate.
First thing to realize is that prednizone and methyl prednosolone are analogs of cortisol. I think this is kept secret from the medical profession. The other thing to realize is that the array of bad side effects are real - but only for high doses, like the ones original prescribed for arthritis decades ago (> 60 mgs). The bad effects are little different than if someone was under chronic stress and continually produced abnormally high dosages of endogenous cortisol.
However, for low doses, not only is prednizone safe, but it has many beneficial effects (such as strengthening bones, improving memory, etc.). Exactly the opposite of what most doctors are taught to believe. So, as in the Pauling Therapy - dosage is everything. The medical literature simply warns about side effects, without distinguishing those caused by higher dosages, and it fails to mention how safe low doses of cortisol are, and how important they are for people like me (with RA) who are apparently not making it endogenously any more.
When this expert spoke to me, he told me that the adrenal glands normally make 3-9 mg of cortisol in prednizone equivalence. (Prednizone is an analog and about 4 times more potent than cortisol). I had found out by trial and error that I can completely eliminate all RA symptoms with 8 mg of methyl prednisolone.
I asked him why they simply don't diagnose RA based on endogenous cortisol. He told that it has been tried many times, but it is too difficult and expensive to measure cortisol, and that the "normal" range seems to vary by a great deal. He said it might take as much as a month to determine the baseline cortisol. (I know from my own experience that it would be almost impossible to be "off" prednizone from more than a few days, much less a month.)
He also explained that dosages less than 5 mg have no effect on adrenal function (won't turn off the adrenals) and he was able to wean his patients down to 1 mg to 5 mg daily.
He thought 8 was high, and told me how to wean down over time to 5 mg or less.
It is easy to titrate because when you have none - every part of the body hurts. When you have "enough" - you feel absolutely fine.
I notice from his paper that no patient got to zero mg of prednizone in 25 years of practice - which means full adrenal function never returns, at least w/cortisol.
I've learned a lot about inflammation, etc. and may write an article. For example, your body's immune system is always on. Cortisol is the regulator. When you have no cortisol, the inflammation rages out of control! This is full blown Rheumatoid Arthritis. (The expert confirmed this also).
My tonsil experience was something. (Fortunately I was able to get extra prednizone from the surgeon.) The pain was excruciating - but not from where the tonsils were removed, but from the back of the throat that takes pressure when swallowing. I finally realized that the narcotic pain pills had little effect, and the I could only control the pain with prednizone. There are implications, but I will relate them in the article.
My problem is finding a doctor who will prescribe life-time prednizone, because they are ALL brainwashed. (That is why I reached out to this expert. Time will tell, but if I don't get a prescription, I am thinking law suit!!!)
Owen R. Fonorow
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